Project Summary

The Archive of Data on Disability to Enable Policy and research (ADDEP) is an initiative to build a repository of data on disability and rehabilitation, with a mission to improve and enable research among researchers, policymakers and practitioners by providing access to disability and rehabilitation data. ADDEP data can be used to better understand and inform the implementation of the Americans with Disabilities Act and other disability policies with the goal of improving the lives and conditions of people with disabilities. In addition to providing access to data for research and analysis, ADDEP strives to offer user support and community outreach to enable data to be optimally used by the widest audience. ADDEP is a joint initiative of the Center for Large Data Research and Data Sharing in Rehabilitation (CLDR) and ICPSR, which together contribute to the ADDEP repository of data to support disability and rehabilitation research. ADDEP includes existing disability data resources already available at ICPSR and also acquired data from rehabilitation medicine and related areas through this partnership with CLDR.

The CLDR involves a consortium of investigators from the University of Texas Medical Branch, Cornell University, ICPSR and the University of Michigan Health System Department of Physical Medicine and Rehabilitation. The CLDR is funded by NIH - National Institute of Child Health and Human Development, through the National Center for Medical Rehabilitation Research, the National Institute for Neurological Disorders and Stroke, and the National Institute of Biomedical Imaging and Bioengineering.

ADDEP provides access to data including a wide range of topics related to disability, such as disability status, health care, rehabilitation services and medicine, disability employment, income, education, disability policies, and many more.


National Institute of Child Health and Human Development


  • Amy M. Pienta

Project Period

2015-09-18 - 2018-06-30